Agenda

Session 1

Chair: Dr Jane Kaye,

Ethox Centre, University of Oxford

10.05 - 10.30

CCB Guiding Principles – a cornerstone for good biobank governance

Dr Brian Clark

onCore UK
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10.30 – 11.00

Generic and enduring consent – the essential elements

Alison Parry-Jones

Wales Cancer Bank
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11:10 - 11:30 Networking Break

Session 2

Professor Graeme Laurie

University of Edinburg

11.30 – 12.00

Information governance requirements to protect donor confidentiality

Harry Cayton OBE

National Information Governance Board for Health and Social Care
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12.00 – 12.30

Linkage of Clinical Information to annotate samples

Chris Carrigan

National Cancer Intelligence Network
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12.30 – 13.30 Networking Lunch

Session 3

Chair: David Neal

NRES

13.30 – 14.00

Regulation of Human Research Biobanks – a Q&A Session

Adrian McNeil

Chief Executive, Human Tissue Authority
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13:45 - 14:10

RNA QA - how low can you go?

Gerry Thomas

Wales Cancer Bank and Imperial College London
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14.00 – 14.30

An example of fair access in principle and practice

Dr Martin Yuille

UK DNA Banking Network
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Session 4

Chair: Derek Stewart

 

14.30 – 15.00

Ethical review of biobanks - policy and procedure

David Neale

National Research Ethics Service
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15.00 – 15.30

Tissue banks and R&D review: IRAS, CSP, TCCs and other acronyms

Dr Janet Messer

NHS R&D Forum
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Session 5

Chair: Adrian McNeil/p>

HTA

16.00 – 16.30

Governance models and benefit sharing

Professor Graeme Laurie

University of Edinburgh
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16.30 – 17.00

Harnessing stakeholder engagement and support

Derek Stewart OBE

Chair, NCRI Confederation of Cancer Biobanks
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17.00 Close