NATIONAL CANCER INTELLIGENCE NETWORK (NCIN)
Initiated by the NCRI, and identified as a key deliverable within the Cancer Reform Strategy for England, the National Cancer Intelligence Network’s aim, as expressed by Professor Mike Richards, the national cancer director for England, is to create “the best cancer information system in the world by 2012”.
The NCIN Core Objectives are:
- Promoting efficient and effective data collection throughout the cancer journey
- Providing a common national repository for cancer datasets
- Producing expert analyses, to monitor patterns of cancer care
- Exploiting information to drive improvements in cancer care and clinical outcomes
- Enabling use of cancer information to support audit and research programmes
NCIN brings together national NHS cancer organisations, cancer registries, clinical champions, health service researchers and a range of other interested parties (including the Office for National Statistics; National Clinical Audit Support Programme; NHS Information Centre) under the auspices of the NCRI. This work is summarised in this briefing note.
The NCIN is developing a centrally resourced analytical and information group, responsible for producing and publishing relevant outputs. Many NCIN outputs will be a product of collaborations. Outputs may be produced, for example, with individual cancer registries, UKACR, Cancer Research UK, ONS as well as academic groups (e.g. CRUK Cancer Survival Group at the London School of Hygiene and Tropical Medicine). All outputs will acknowledge the input of partner organisations. To access NCIN publications please click here.
Access to samples and data for cancer research
The NCRI, in collaboration with the National Cancer Intelligence Network and onCore UK, ran a consultation on access to samples and data for cancer research between August and October 2008. To find out more about the consultation and to view the consultation documents please click here