CONSULTATION ON ACCESS TO SAMPLES AND DATA FOR CANCER RESEARCH
To inform development of the access policy template, the NCRI, in collaboration with the National Cancer Intelligence Network and onCore UK, ran a consultation between August and October 2008. The responses to the consultation strongly supported its objective and we would like to thank all those who took the time to respond.
The following documents related to the consultation are available:
Summary of the Responses – this provides a useful overview of the issues relating to access to personal data and biosamples
Executive summary only
Letter introducing consultation
Original consultation document
A number of organisations published their responses to the consultation and the links to each of these can be found below:
- International Brain Tumour Alliance, Meningioma UK and the United Brain Tumour Campaign (UK)
[Accessed 03 Feb 2009] - Medical Research Council
[Accessed 03 Feb 2009] - Patient Information Advisory Group
[Accessed 03 Feb 2009] - Royal College of Physicians and Surgeons of Glasgow
[Accessed 03 Feb 2009] - The Wellcome Trust
[Accessed 03 Feb 2009]
