NCRI Patient Involvement Forum Information
“Consumer” refers to a patient or carer who has been affected by cancer and represents the wider patient/carer community in a professional capacity as members of NCRI’s Clinical Research Groups and its initiatives.
At any one time, up to one hundred consumers will be involved in our activities; making contributions to the setting of our strategy and, through involvement in NCRI activities, shaping actions at national level as experts in the experience of cancer.
All consumers of the NCRI are members of the NCRI Consumer Forum. This aims to foster a vibrant community to work with NCRI as partners in cancer research, exchanging knowledge and expertise in a coordinated way.
Cancer research is only worthwhile if it makes a real difference to people and families – we need better treatments for patients, with fewer side effects. We also need better ways of preventing people from getting cancer, for example by helping them to stop smoking and to have healthier lifestyles. Patients contribute to research by participating directly in clinical studies, but they and their carers and families can also be involved in other ways.
We invite patients, carers and others affected by cancer (also known as ‘consumers’) to participate in all aspects of NCRI’s work. At any one time, up to one hundred consumers will be involved in our activities; making contributions to the setting of our strategy and, through involvement in NCRI activities, shaping actions at national level as experts in the experience of cancer.
What we do
All consumers involved in the NCRI are members of the NCRI Consumer Forum. The forum aims to foster a vibrant and collaborative community to work with NCRI as partners in cancer research; exchanging knowledge and expertise in a coordinated way.
All of NCRI’s clinical research activities have consumer members (patient/carer representatives), such as on the 19 NCRI Clinical Studies Groups (CSGs). Consumer members participate in all aspects of the CSGs activities.
We also provide bursaries for NCRI consumers to attend the annual NCRI Cancer Conference. This is a great opportunity for our consumers to learn more about the latest scientific progress, network with the wider research community and use the knowledge and experience gained to further inform other activities they’re involved in.
Do you want to get involved in helping to design & deliver cancer research in the UK?
There are opportunities throughout the year when we look to recruit patients, carers and others affected by cancer to join the National Cancer Research Institute (NCRI)’s Clinical Studies Group (CSG).
The 19 NCRI CSGs have a remit to develop portfolios of clinical trials for specific cancer types or treatment approaches. This includes considering new research questions, developing proposals for trials, securing funding and overseeing the portfolio of existing studies. The CSGs are multi-disciplinary, with surgery, medical oncology, clinical oncology, radiology, pathology, epidemiology, statistics and other professions involved in clinical trials, represented on each Group as appropriate. For a full list of the 19 Groups, their members and remits, please visit the NCRI CSGs website.
All NCRI CSGs have 2 consumer members (patient/carer representatives). Each CSG meets at least twice a year and a number of the Groups have Subgroups and/or Working Parties, which meet in the intervals between the main Group meetings. Many of the Groups also host national clinical trials meetings of between 100 and 250 delegates. Consumer members participate in all aspects of the CSGs activities and are expected to provide written updates for each CSG meeting. CSG consumers also become members of the NCRI Consumer Forum.
Applicants should have:
- An interest in cancer research
- Personal experience of cancer or caring for someone with cancer
- Experience of working in groups/committees
- Time to participate fully in CSG activities, including telephone and email discussions
- Excellent communication skills
If you are interested in being notified about the latest opportunities, we encourage you to email firstname.lastname@example.org to subscribe to our mailing list.