C13
Continued development of consumer involvement in a research collaborative, and the use of Peer Education
Paul Holroyd, Katherine Froggatt, Jill Robinson, Gail Capstick, Rita Hewitt, Deirdre Jacks, Wendy Johnson, Irene McGill, Norah Knifton, Oliver Coles, Mary Turner
Lancaster University, UK
Background
In October 2007 a research partner forum was established in the International Observatory on End of Life Care at Lancaster University, to enable consumers to become involved in research projects within the Cancer Experiences Collaborative (CECo), an NCRI funded Supportive and Palliative Care Research Collaborative. Consumer involvement continues to develop through engagement between researchers and research partners (members of the public and service users). The forum currently has 11 members with a range of professional backgrounds, experiences of cancer and other life-threatening illnesses and caring responsibilities.
Method
The aims of the Forum are: (a) to develop research partner led projects, and (b) to support individuals involvement in the development of CECo initiated projects. Monthly meetings, facilitated by a CECo research fellow, provide contact between research partners and CECo researchers. Further involvement occurs through specific project meetings and groups, and training events.
Results
In 2008 two proposals were developed, and submitted for funding, one of which was submitted at the 2008 NCRI conference and subsequently shortlisted for a Macmillan User-Led Research Grant. Following a series of CECo training sessions, a sub-group was formed, also in 2008, to consider ways in which Peer Education can be used locally to raise awareness of end of life issues. Independent funding has now been secured to develop this work.
Conclusion
Both CECo and the forum members continue to benefit from this initiative. Ongoing commitment and enthusiasm is required from researchers and members to maintain effective momentum. Support for members, and their personal development, through relevant training is essential. The Peer Education initiative will open the groups scope of activity and involvement into the wider community.
