NCRI Consumer Forum Information
Cancer research is only worthwhile if it makes a real difference to people and families – we need better treatments for patients, with fewer side effects. We also need better ways of preventing people from getting cancer, for example by helping them to stop smoking and to have healthier lifestyles. Patients contribute to research by participating directly in clinical studies, but they and their carers and families can also be involved in other ways.
We invite patients, carers and others affected by cancer (also known as ‘consumers’) to participate in all aspects of NCRI’s work. At any one time, up to one hundred consumers will be involved in our activities; making contributions to the setting of our strategy and, through involvement in NCRI activities, shaping actions at national level as experts in the experience of cancer.
“Consumer” refers to a patient or carer who has been affected by cancer and represents the wider patient/carer community in a professional capacity as members of NCRI’s Clinical Research Groups and its initiatives.
At any one time, up to one hundred consumers will be involved in our activities; making contributions to the setting of our strategy and, through involvement in NCRI activities, shaping actions at national level as experts in the experience of cancer.
What we do
All consumers involved in the NCRI are members of the NCRI Consumer Forum. The forum aims to foster a vibrant and collaborative community to work with NCRI as partners in cancer research; exchanging knowledge and expertise in a coordinated way.
All of NCRI’s clinical research activities have consumer members (patient/carer representatives), such as on the 18 NCRI Clinical Studies Groups (CSGs). Consumer members participate in all aspects of the CSGs activities.
We also provide bursaries for NCRI consumers to attend the annual NCRI Cancer Conference. This is a great opportunity for our consumers to learn more about the latest scientific progress, network with the wider research community and use the knowledge and experience gained to further inform other activities they’re involved in.
Could you help to design & deliver cancer research in the UK? Do you have a strong interest in cancer research? Are you passionate about the patient experience?
If you have recently experienced cancer as a patient or carer and want to help shape the development of research trials for cancer patients, then we’d like to hear from you. Here at the National Cancer Research Institute (NCRI) we involve patients and carers (consumers) at all stages of our work, which include developing clinical trials and high quality studies exploring a range of treatment approaches for specific cancer types. We are currently recruiting consumers to our Clinical Studies Groups.
Applicants should have:
- An interest in cancer research
- Personal experience of cancer or caring for someone with cancer
- Experience of working in groups/committees
- Time to participate fully in group activities
- Excellent communication skills
The National Cancer Research Institute (NCRI) ensures patient involvement across all its activities. We are currently seeking consumer (patient/carer) members, to represent the patient community, on our Clinical Studies Groups (CSG) in the following areas:
- Bladder and Renal
- Haematological Oncology
- Head and Neck
- Psychosocial Oncology
- Screening Prevention and Early Diagnosis
- Upper Gastrointestinal
We offer training, support and a scientific mentor to all consumer members.
Consumer members participate in all aspects of the CSGs activities and also become members of the NCRI Consumer Forum, our wider patient/carer group. Each CSG has 2 consumer members.
The deadline for applications is Monday 5th June, 2017. All interviews will take place during the first 2 weeks of July.
We are committed to increasing the diversity of our consumer representation and applications are encouraged from individuals based throughout the UK, from all ethnic groups, all age groups, and from people with experience of all kinds of cancer. At present, the NCRI reimburse travel expenses to attend CSG meetings, and there is also an allowance, or honorarium, for attendance. Further details about consumer activity and payments, are provided on recruitment to the role.
Interested applicants are encouraged to contact Natalie Salhov, at firstname.lastname@example.org or tel. 0203 469 8600