Supporting Patient and Public Involvement and Engagement in research that uses health data

Supporting Patient and Public Involvement and Engagement in research that uses health data

Date published: Apr 28 2020

NCRI is working with Health Data Research UK (HDR UK), the Health Data Research Hub for Cancer (DATA-CAN) and use MY data to facilitate and support Patient and Public Involvement and Engagement (PPIE) in research projects that use patients’ health data. Last week we ran a small workshop to gain a better understanding of the experiences of PPIE representatives when involved in projects that use health data and the support that would be useful to make this involvement work well.