2019 NCRI and NHS England Living With and Beyond Cancer event

Date: Monday 29 April to Tuesday 30 April 2019

Venue: Mercure Manchester Piccadilly Hotel, Portland Street, Manchester, M1 4PH

Organised by: National Cancer Research Institute (NCRI) and NHS England

#NCRI_LWBC #LivingWithandBeyondCancer

» Click here to register for this event

About this event

Welcome to the first NCRI and NHS England joint two-day Living With and Beyond Cancer event

Thanks to improved diagnosis and treatment, more and more people are living with and beyond cancer. As cancer also occurs at a higher rate in older individuals, the prevalence of cancer is increasing as people are living longer. In the UK alone, there were 2.5 million people alive following a cancer diagnosis in 2015, and this is predicted to rise to 4 million by 2030.

This means more and more people each year are living with the consequences of cancer and its treatment which may reduce their quality of life. This growing concern was highlighted by the NHS’s Independent Cancer Taskforce in its 2015 report, which called for the transformation of support for people living with and beyond cancer.

This collaborative NCRI and NHS Cancer Programme event is about how people’s needs can be better met through patient-centred LWBC research and transformation of services.

Day One is part of the NCRI’s ongoing commitment to stimulating vital research that can make much-needed progress in improving health and quality of life for people living with the consequences of cancer and its treatment.

Day Two is for NHS Cancer Alliances, who lead on the local delivery of services, care and outcomes for everyone with cancer. It is part of the NHS England’s ongoing work to support people affected by cancer to radically improve care and support for people once treatment ends.

Key speakers:

Day One

  • Prof Diana Greenfield, Macmillan Consultant Nurse, Honorary Professor at the Sheffield Teaching Hospitals NHS Foundation Trust
  • Richard Stephens, NCRI Consumer Forum Lead and prominent patient advocate in the field of cancer research
  • Prof Sam H Ahmedzai, Emeritus Professor of Supportive Care at the University of Sheffield, NIHR Clinical Research Network National Specialty Lead for Cancer, Chair of NCRI Supportive and Palliative Care Clinical Studies Group and Chair of NIHR Cancer & Nutrition Collaboration Steering Committee
  • Dr Derek Kyte, Lecturer in Health Research Methods and Centre for Patient-Reported Outcome Research (CPROR) Assistant Director at the University of Birmingham and NIHR Fellow
  • Prof Claire Foster, Professor of Psychosocial Oncology and Director of Macmillan Survivorship Research Group at the University of Southampton
  • Prof Richard Shaw, Professor of Head & Neck Surgery and Honorary Consultant in Oral & Maxillofacial at the University of Liverpool, NIHR Clinical Research Network (Cancer) Associate Director & Surgical Oncology Specialty Lead
  • Dr Lynn Calman, Principal Research Fellow and Deputy Director of Macmillan Survivorship Research Group at the University of Southampton

Day Two

  • David Fitzgerald, Cancer Programme Director for NHS England
  • James Sanderson, Director of Personalisation & Choice for NHS England
  • Prof Simon Rogers, Consultant Maxillofacial Surgeon at the University Hospital Aintree, Honorary Reader at the University of Liverpool and Chair of NHS England Quality of Life Metric Steering Group
  • Speakers from NHS England, Cancer Alliances and charities

Who should attend:

Please note: Day Two is open only to NHS Cancer Alliances and Day One is a paid event.

Day One

Sign up for this day if you involved in or are interested in being involved in and fostering LWBC research. This event will benefit multidisciplinary cancer care/research professionals including:

  • Consultants and trainee doctors in oncology, acute/general medicine, palliative care
  • Nurses and allied health care professionals in oncology, palliative care
  • GPs and GP trainees interested in related research
  • Doctors training in related specialties
  • Researchers in oncology, palliative care
  • Patient and carer advocates and representatives

Day Two

This day is for NHS England Cancer Alliance teams and invited guests. It is free to attend and each Cancer Alliance team may nominate up to 6 delegates. Please coordinate attendance and registration with your Alliance LWBC lead.

Day Two will focus on the transformation work for LWBC in Cancer Alliances and their partners.

Conference aims:

Day One

This event will provide delegates working in or looking to work in the LWBC research field with:

  • An opportunity to shape their LWBC research ideas in line with the research priorities set out by patients, carers and health care professionals
  • An opportunity to network with like-minded colleagues and explore potential collaborations
  • Help/advice from the NCRI, funders and peers on developing ambitious and successful LWBC research proposals, to address the NCRI LWBC research priorities

Day Two

This event will provide delegates across Alliances the opportunity to share with and learn from each other examples of best practice and local learning for personalising care and support for people living with and beyond cancer.


Day One

£125 Standard

£75 Allied health care professional/Nurse/Funders

£50 Trainee/Student

£50 Day Two delegates

£30 Patient/Carer representative

Day Two

Free to attend. Open to Cancer Alliances only.


Day One – Monday 29 April 2019, 10:00 – 16:30

Making your research matter to people living with and beyond cancer

9:30 – 10:00 Arrival, coffee and registration
10:00 – 10:05 Welcome

Dr Iain Frame, Chief Executive, National Cancer Research Institute (NCRI)

10:05 – 10:45 Living With and Beyond Cancer (LWBC) research priorities

Chair: Prof Diana Greenfield

How we got here

Richard Stephens, NCRI Consumer Forum Lead

The LWBC research priorities



10:45 – 11:10 The role of the National Cancer Research Institute (NCRI) and Clinical Studies Groups (CSGs) in developing LWBC research studies

Chair: tbc


Nicola Keat, Head of Clinical Studies Groups, NCRI

From generating research ideas to improving outcomes: what the NCRI CSGs can deliver

Prof Sam Ahmedzai


11:10 – 11:30 Coffee break and Networking session
11:30 – 12:30 Successful study design

Chair: Emma Kinloch, NCRI Consumer Forum

Optimising patient-reported outcome (PRO) capture in research

Dr Derek Kyte

Macmillan HORIZONS Programme: establishing a UK-wide prospective cohort to understand the impact of cancer and its treatment on everyday lives

Prof Claire Foster

HOPON, DAHANCA 21 – lessons in methodology and avoiding pitfalls

Prof Richard Shaw


12:30 – 13:10 Funding for LWBC research

Macmillan Cancer Support


National Institute for Health Research (NIHR)

Dr Ruth Nebauer, Assistant Director of Innovation Programmes

Marie Curie

Dr Sabine Best, Head of Research

Medical Research Council (MRC)

Dr Mariana Delfino-Machin, Programme Manager for Cancer

NCRI funding guidance

Mariano Kälfors, Programme Manager for LWBC Research Initiative

13:10 – 14:00 Lunch
14:00 – 15:30 Parallel workshop sessions

A – Models of care (Chair – tbc)

B – Consequences of treatment (Chair– Prof Claire Foster)

C – Patient Reported Outcomes (Chair– Dr Lynn Calman)

D – Keeping research close to the patients (Chair– Prof Diana Greenfield)

15:30 – 15:55 Coffee break and Networking session
15:55 – 16:25 Feedback from breakout session

Ian Lewis, Head of Strategy and Initiatives, NCRI

16:25 – 16:30 Close

Day Two – Tuesday 30 April 2019, 10:15 – 16:00

Personalising care and support for people living with and beyond cancer

09:45 – 10:15 Arrival and Registration
10:15 – 11:00 Personalising care and support for people living with and beyond cancer


Long Term Plan and the role of Cancer Alliances

David Fitzgerald, Cancer Programme Director, NHS England


The NHS Comprehensive Model of Personalised Care

James Sanderson, Director of Personalisation & Choice, NHS England


What personalisation of care means to me

Patient representative tbc

11:00 – 11:30 Coffee break and networking
11:30 – 12:30 First parallel workshop session

A series of parallel workshops led by organisations across Alliances to share examples of best practice and local learning.

Delegates’ workshop choices must be made at time of event registration and cannot be altered. Delegates will be reminded of these on arrival. See below for workshop titles.

12:30 – 13:15 Lunch and networking
13:15 – 14:15 Second parallel workshop session
14:15 – 14:30 Coffee break
14:30 – 15:30 Third parallel workshop session
15:30 – 16:00 Quality of Life Metric

Prof Simon Rogers, Consultant Surgeon and Chair of the QoL Metric Steering Group

16:00 Close
Session Workshop Workshop title and session chair
1 A How can the main cancer information systems enable us to deliver better care  for people living with and beyond cancer?

Somerset and Infoflex

B Evaluation of LWBC interventions / Using data to influence change


C Allied Health Professionals into Action on Cancer


D Personalised (stratified) follow up – focus on prostate cancer


2 E Prehabilitation


F How is the workforce changing to meet the needs of people living with and beyond cancer?


G Health and wellbeing support – interactive workshop


H Personalised (stratified) follow up – focus on breast cancer


3 I Treatment summaries – interactive workshop


J Role of Primary Care (title to be confirmed)

Tbc – Macmillan

K Personalised (stratified) follow up – focus on colorectal cancer


L Commissioning and contracting for personalised care – practical approaches



A limited number of rooms have been reserved for this event at the Mercure Manchester Piccadilly Hotel at a discounted delegate rate.

Upon registering you will receive a special discount code in your confirmation email that you can use to book your Mercure accommodation directly. Please note that you must book with your code by 25 March to receive this preferential rate, and while availability lasts.

Accommodation requests received after 25 March will be processed on a space-available basis and will be subject to normal Mercure rates.

Venue and transport

Mercure Manchester Piccadilly Hotel

Portland Street


M1 4PH

Phone: 0161 7511 412



Nearest train stations:

  • Manchester Piccadilly (0.2 miles)
  • Manchester Oxford Road (0.5 miles)
  • Manchester Victoria (0.9 miles)

Nearest airports:

  • Manchester Airport (9 miles)
  • Liverpool John Lennon Airport (27.3 miles)

Nearest motorways:

  • M602 JCT 3 (1.9 miles)
  • M602 JCT 2 (3.9 miles)
  • M60 JCT 20 (4.1 miles)

Sat Nav: Use postcode M1 4DY to ensure you arrive at car park instead of main entrance.

Parking and rates:

  • Car on site (80 spaces)
  • Up to 4 hours – £8
  • Up to 10 hours – £15
  • Up to 24 hours – £20

Prices are per vehicle; blue badge holders receive complimentary car parking upon display of a valid blue badge.


We welcome your support for Day One of this event, which will give participants the opportunity to learn about the latest topics in Living With and Beyond Cancer research.

For more information contact lwbc@ncri.org.uk.