The NCRI Consumer Forum
NCRI invites patients, carers and others affected by cancer (also known as ‘consumers’) to participate in all aspects of NCRI’s work. At any one time, up to one hundred consumers will be involved in our activities; making contributions to the setting of our strategy and, through involvement in NCRI activities, shaping actions at national level as experts in the experience of cancer.
All consumers involved in the NCRI are members of the NCRI Consumer Forum. The forum aims to foster a vibrant and collaborative community to work with NCRI as partners in cancer research; exchanging knowledge and expertise in a coordinated way.
The main purpose of this library is for NCRI Consumer Forum members to access key reference information related to their roles in NCRI activities. It also serves as a platform to showcase consumer involvement in cancer research. Most of the resources have been developed by consumers themselves.
Adding Value and Impact
PPI: Getting Going
The National Cancer Patient Experience Survey (NCPES) is an annual survey commissioned by NHS England, which gives responses from over 68,000 recently treated cancer patients (across types of cancer and groups of patients, both locally and nationally) detailing their experiences of care. The 2012 NCPES introduced questions about research and NCRI consumers helped bring this about. Findings drawn from the NCPES can be found below.
- Overview of Recruitment to Trials in England, citing the findings of the NCPES 2012
» Overview from 2012 NCPES (PDF, 2012)
- Findings from the 2013 NCPES survey: New data on awareness of research, research conversations and participation
» Access for All? (PDF, 2013)
- Findings and Opportunities from NCPES (National Cancer Patient Experience Survey) 2012-14
» 2012-14 NCPES findings for consumers (PDF, 2015)
» Briefing notes to accompany above slides (PDF, 2015)
- Variations in research conversations with patients and potential participants. Results from the 2014 NCPES
» It’s OK to ask – but who doesn’t get asked (PDF, 2013)
- Results from the 2014 NCPES
» We need to Talk (PDF, 2014)
Consumer research presented at the NCRI Cancer Conference can be viewed in the Conference Abstract library at the link below. Type in ‘consumers’ to the search box to view consumer research.
Posters and presentations at the 2014 NCRI Cancer Conference:
Posters and presentations at the 2015 NCRI Cancer Conference
Other Consumer-related sources
Contact the NCRI Consumers
Email us at firstname.lastname@example.org