The NCRI Consumer Forum

NCRI invites patients, carers and others affected by cancer (also known as ‘consumers’) to participate in all aspects of NCRI’s work. At any one time, up to one hundred consumers will be involved in our activities; making contributions to the setting of our strategy and, through involvement in NCRI activities, shaping actions at national level as experts in the experience of cancer.

All consumers involved in the NCRI are members of the NCRI Consumer Forum. The forum aims to foster a vibrant and collaborative community to work with NCRI as partners in cancer research; exchanging knowledge and expertise in a coordinated way.

» Further information on the NCRI Consumer Forum (internal webpage)

Resource library

The main purpose of this library is for NCRI Consumer Forum members to access key reference information related to their roles in NCRI activities. It also serves as a platform to showcase consumer involvement in cancer research. Most of the resources have been developed by consumers themselves.

The National Cancer Patient Experience Survey (NCPES) is an annual survey commissioned by NHS England, which gives responses from over 68,000 recently treated cancer patients (across types of cancer and groups of patients, both locally and nationally) detailing their experiences of care. The 2012 NCPES introduced questions about research and NCRI consumers helped bring this about. Findings drawn from the NCPES can be found below.

 

Other Consumer-related sources

» Patient Involvement at Cancer Research UK (CRUK website)

Contact the NCRI Consumers

Email us at consumers@ncri.org.uk