Our work to advance cancer research puts cancer patients and carers at its heart, by inviting patients, carers and others affected by cancer (also known as ‘consumers’) to participate in all aspects of our work.
All NCRI activities have direct input from patients and carers, who are experts in the experience of cancer. Patients and carers shape actions at the national level as part of an NCRI Group, or as part of our pathology or radiotherapy initiatives. Patients and carers are also represented on the Strategy Advisory Group and NCRI’s Board of Trustees, contributing to setting NCRI’s strategy and governance.
Why involve patients and carers in research?
Cancer research is only worthwhile if it makes a real difference to patients and carers – offering better treatments, with fewer side effects. Patients can contribute to research by participating directly in clinical studies, however, patients, carers and their families can also be involved in other ways. For example, being part of the design and development of research, ensuring it is practical and relevant, and directly benefits cancer patients and their carers.
NCRI supports UK Standards for Public Involvement