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We thank the following members who submitted their data to be analysed (see below).

AMMF (The Alan Morement Memorial Fund)

Blood Cancer UK

Bone Cancer Research Trust

The Brain Tumour Charity

Brain Tumour Research

CCLG (Children’s Cancer and Leukaemia Group)

Childhood Eye Cancer Trust

CUP Foundation

The Eve Appeal

GUTS UK Charity

Leukaemia UK

Mesothelioma UK

Myeloma UK

Neuroendocrine Cancer UK

North West Cancer Research

Oracle Cancer Trust

Orchid Cancer Appeal

Ovarian Cancer Action

Pancreatic Cancer UK

Sarcoma UK

Solving Kids Cancer UK

Target Ovarian Cancer

The Urology Foundation

Wellbeing of Women


Special thanks to the member working group of Karen Noble of Brain Tumour Research and Liz Darlison of Mesothelioma UK, and to the Cancer52 policy group. Also to Jennifer Harris of the Association of the British Pharmaceutical Industry (ABPI), who collated published evidence on rare and less common cancer research as part of the ABPI volunteer scheme.


  1. Alvi M, Wilson R & Salto-Tellez M. Rare cancers: the greatest inequality in cancer research and oncology treatment. Br J Cancer 117, 1255–1257; 2017.
  2. Maruthappu M, Head MG, Zhou CD, et al. Investments in cancer research awarded to UK institutions and the global burden of cancer 2000–2013: a systematic analysis. BMJ Open 2017;7:e013936. Doi:10.1136/bmjopen-2016- 013936
  3. Analysis using data from Cancer deaths 2020-2021 England and Wales. Office for National Statistics.
  4. What is cancer of unknown primary (CUP)? Cancer Research UK. Last reviewed 10 May 2021. Accessed April 2023. Available:
  5. Children’s cancer incidence. Cancer Research UK. Accessed March 2023. Available:
  6. Cancer mortality for common cancers. Cancer Research UK. Last reviewed: 31 May 2022. Accessed February 2023. Available:
  7. Research England funding allocations 2021 to 2022. Research England, published 14 October 2021. Available: