By 2030 four million people in the UK will be living with the long-term consequences of cancer, but currently there is very little research on the problems they face and how these can be tackled. To help them live better lives, more focused research is needed.
To determine priorities for research that will help people live better with and beyond cancer, NCRI partnered with the James Lind Alliance on a Priority Setting Partnership. The two-year project involved two UK-wide surveys which attracted more than 3500 responses from patients, carers, and health and social care professionals. From these, we identified 26 key questions and distilled these down to 10 top research priorities.
This is the first time that clear research priorities have been identified in this area. Find out the UK Top living with and beyond cancer research priorities below.
What are the most effective ways to stop cancer coming back (combining treatments and life-style changes)?
What are the social, financial and economic impacts of living with and beyond cancer – how does it affect families, relationships, finances, work and use of NHS services?
What are the best ways to cope with the fear and anxiety about cancer returning (combining self-management approaches, treatments and psychological support)?
How can we predict who is at risk of developing mental health conditions in people living with and beyond cancer (e.g. depression) and what are the best ways of supporting those with mental health conditions?
What are the best ways to support people living with and beyond cancer to make lifestyle changes to improve their health?
If people with cancer are involved in their own healthcare decisions (including participating in multi-disciplinary team meetings with health professionals), does this lead to better outcomes?
What are the psychological and social impacts on children who have a parent (or parents) with cancer, and what are the best ways to support those children?
What is the best form of rehabilitation and other support to help people living with and beyond cancer return to or maintain their usual activities (e.g. work)?
What are the best ways to manage the consequences of nerve damage caused by cancer treatments?
How do the support needs of people with rare and less common cancers differ from people with more common cancers, and how are those needs best met?
What can be done to reduce and manage the impact of cancer treatments on people’s sex lives?
What are the best ways to support people living with and beyond cancer who live alone?
How is cancer perceived across multiple black and minority ethnic groups – what are the similarities and differences?
Can lymphoedema be prevented? If not, how is it best treated/ managed?
What is the optimal follow-up approach to detect whether a cancer has come back?
What are the spiritual care needs of people living with and beyond cancer?
Register your research
The NCRI welcome information in relation to ongoing or planned research which addresses any of the Top 26 living with and beyond cancer research questions, so we can analyse the current research landscape and help accelerating research into practice.