Julie Wolfarth is an NCRI Consumer member of the NCRI Living With and Beyond Cancer and NCRI Clinical and Translational…
Using lived experience to help people affected by prostate cancer
'Prostate Cancer Research has announced the creation of a new website for people affected by prostate cancer. Prostate Cancer Research…
What we could do in rare cancer research in 2022 and beyond
'NCRI Consumer lead, Emma Kinloch, shares her thoughts on research into rare cancers on rare disease day 2022. This article…
Patients and carers providing focus for pancreatic cancer research
'On World Pancreatic Cancer Day (18 November), NCRI Consumer Forum member, Lesley Goodburn, wrote about her experiences and how they…
Patient and public involvement in palliative care research funding decisions
'On World Hospice and Palliative Care Day (9 October) NCRI Consumer Forum member, Paul Charlton, has written about his experiences…
Prioritising COVID-19 research questions for the cancer population
'How co-designing research questions to understand what people with cancer want from COVID-19 research, informed some surprising results, and in…
Can daily aspirin help to stop oesophageal cancer from coming back?
'The NCRI Upper Gastrointestinal Group has published the following article outlining the Add-Asprin trial. We all know aspirin as a…
Study identifies challenges in involving young people in research
'Evaluating specialist care for young people with cancer was identified as a research priority by the NCRI Teenage and Young…
What should we call patient representatives and advocates?
'The National Cancer Research Institute (NCRI) has led the way in involving patients, carers and other people with experience of…
Accurate detection of prostate cancer and the crucial role of patient involvement
'The Prostagram trial investigated the use of MRI scans to detect prostate cancer. At present, there is no nationally approved…
The language of cancer and COVID-19 – helpful or harmful?
'Janette Rawlinson is a consumer member of NCRI’s lung cancer advanced disease sub-group and Consumer Forum, steering committee member of…
NCRI Groups and Consumers answering unanswered questions in rare cancer
'A rare cancer type with no standard of care Upper tract urothelial cancer is a rare type of cancer that…